Question from Judy Ullrich

Good evening. I was researching Desmoid Tumors and saw your story. My neighbor just told me her 8 year-old daughter is being sent to St Jude’s because she was just diagnosed with a very large Desmoid Tumor growing in her side, down in the muscle of her left leg. St Jude is 350 miles from us. What should they expect? How can we help? Thank you